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Key Points Question How do patient spokespersons distinguish surrogate medical decision-making from patient advocacy? Findings This qualitative study of a subset of 36 participants in a randomized clinical trial found… Click to show full abstract
Key Points Question How do patient spokespersons distinguish surrogate medical decision-making from patient advocacy? Findings This qualitative study of a subset of 36 participants in a randomized clinical trial found substantial variability in how spokespersons for patients with chronic illness conceptualize their role as surrogate decision-makers and/or patient advocates. Meaning Understanding how spokespersons perceive their role is critical for assessing the effectiveness of advance care planning interventions.
Journal Title: JAMA Network Open
Year Published: 2022
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