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Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit

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Key Points Question In the absence quality metrics for end-of-life care in pediatric cardiac intensive care units (CICUs), how do interdisciplinary staff perceive quality of dying and death (QODD)? Findings… Click to show full abstract

Key Points Question In the absence quality metrics for end-of-life care in pediatric cardiac intensive care units (CICUs), how do interdisciplinary staff perceive quality of dying and death (QODD)? Findings In this cross-sectional survey study of 713 medical professionals involved in 60 deaths in the CICU, the pediatric intensive care unit (PICU)–QODD instrument was a reliable and valid measure of QODD in CICUs, with overall positive perceptions of QODD yet negative perceptions of the 7 days prior. Lower PICU-QODD scores were reported by nursing or allied health staff, by less experienced staff, for patients with cardiac-surgical admissions and comorbidities, and for deaths following treatment limitation or misaligned with family wishes. Meaning These data could guide strategies to improve staff well-being and end-of-life experiences.

Keywords: intensive care; quality; staff; cardiac intensive; care; pediatric cardiac

Journal Title: JAMA Network Open
Year Published: 2022

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