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The National Spina Bifida Patient Registry (NSBPR) was established in 2008, as a partnership between the CDC and spina bifida (SB) clinics throughout the United States. The purpose of this… Click to show full abstract
The National Spina Bifida Patient Registry (NSBPR) was established in 2008, as a partnership between the CDC and spina bifida (SB) clinics throughout the United States. The purpose of this study is to explore the initial work of this project through a literature review of published studies from the NSBPR and provide a description of how this body of literature has developed overtime.
Keywords:
patient registry;
national spina;
spina;
spina bifida;
bifida patient
Journal Title: Birth Defects Research
Year Published: 2018
Link to full text (if available)
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Journal Title: Birth Defects Research
Year Published: 2018
Link to full text (if available)
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recommendations!