Patients who were informed of their subtype reported a greater understanding of all topics surrounding diagnosis and care following their diagnosis meeting (figure 1). Additionally, patients informed of their subtype… Click to show full abstract
Patients who were informed of their subtype reported a greater understanding of all topics surrounding diagnosis and care following their diagnosis meeting (figure 1). Additionally, patients informed of their subtype reported improved communication with the doctor across key categories. Compared to those who were not informed/not sure, patients who were informed of their subtype felt more confident voicing their concerns to the doctor (59% vs 47%, respectively), sought clarification on things they did not understand more frequently (80% vs 70%), and brought forward questions about side effects more frequently (82% vs 74%). Conclusions: Being informed of subtype at diagnosis was correlated with more self-reported positive healthcare experiences; those informed reported bettered management of their healthcare through improved understanding and communication. Informing patients of their subtype is the best way to ensure they understand their diagnosis and care and are sourcing the right information, which can translate positively across their experience.
               
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