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A prospective, qualitative study was conducted to develop a patient‐reported outcome measure (PROM) for daily administration via electronic diary (eDiary) to assess the severity of nosebleeds in patients with hereditary… Click to show full abstract
A prospective, qualitative study was conducted to develop a patient‐reported outcome measure (PROM) for daily administration via electronic diary (eDiary) to assess the severity of nosebleeds in patients with hereditary hemorrhagic telangiectasia (HHT), in accordance with Food and Drug Administration (FDA) PROM guidance criteria.
Keywords:
telangiectasia development;
hereditary hemorrhagic;
nosebleeds hereditary;
hemorrhagic telangiectasia;
patient
Journal Title: Laryngoscope Investigative Otolaryngology
Year Published: 2018
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Journal Title: Laryngoscope Investigative Otolaryngology
Year Published: 2018
Link to full text (if available)
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recommendations!