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Quality improvement of clinic flow for complex genetic conditions: Using Ehlers–Danlos syndrome as a model

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Genetic providers face the challenge of having adequate time to conduct a comprehensive evaluation. Hypermobile Ehlers–Danlos (hEDS) syndrome has a complex array of symptoms. An initial visit can involve approximately… Click to show full abstract

Genetic providers face the challenge of having adequate time to conduct a comprehensive evaluation. Hypermobile Ehlers–Danlos (hEDS) syndrome has a complex array of symptoms. An initial visit can involve approximately 60–80 min and an additional 45 min for the check‐in and checkout process. We propose a model to improve clinic flow and patient satisfaction by using: (a) pre‐appointment questionnaire (b) disease information sheet outlining basic management and (c) itinerary detailing the visit.

Keywords: quality improvement; model; ehlers danlos; improvement clinic; clinic flow

Journal Title: Molecular Genetics & Genomic Medicine
Year Published: 2018

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