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Development and validation of a health‐related quality of life questionnaire for pediatric patients with interstitial lung disease

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Children's interstitial lung disease (chILD) is often associated with multiple burdens and chronic impairment of health‐related quality of life. Patient reported outcomes describe the patients’ perspective on medical conditions and… Click to show full abstract

Children's interstitial lung disease (chILD) is often associated with multiple burdens and chronic impairment of health‐related quality of life. Patient reported outcomes describe the patients’ perspective on medical conditions and their treatments. We aimed to develop and evaluate the psychometric properties of a chILD‐specific PRO (chILD‐QoL) as an instrument for monitoring the patients’ health status.

Keywords: lung disease; health related; interstitial lung; related quality; health; quality life

Journal Title: Pediatric Pulmonology
Year Published: 2018

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