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‘Coming Out’ with Autism: Identity in People with an Asperger’s Diagnosis After DSM-5

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Asperger’s Syndrome was introduced as a separate diagnostic category in the DSM-4 (1994). Its subsequent absorption into autism spectrum disorder in the DSM-5 (2013) led to vigorous debate and concerns… Click to show full abstract

Asperger’s Syndrome was introduced as a separate diagnostic category in the DSM-4 (1994). Its subsequent absorption into autism spectrum disorder in the DSM-5 (2013) led to vigorous debate and concerns about the loss of the unique Asperger’s identity. Existing research has identified that adults previously diagnosed with Asperger’s have expressed a diverse range of opinions regarding the DSM-5 changes. This Australian study explored the role of disability identity development in responses to the change through semi-structured interviews with 12 adults diagnosed with Asperger’s under the DSM-4. Their different views did not appear to be a function of demographic variables; a connection was identified between participants’ views of the change and differing stages of integration with the Asperger’s and/or autism identities.

Keywords: asperger; dsm; autism; coming autism; autism identity

Journal Title: Journal of Autism and Developmental Disorders
Year Published: 2019

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