LAUSR

Sexuality expression and experiences are an often-ignored component of health and well-being for adults with intellectual disabilities (ID). Adults with ID have gaps in their sexuality education, and experience restrictions from parents and caregivers exploring their sexuality. However, parental control does not deter adults with ID from desiring sexual experiences, and instead often leads to secretive and potentially exploitative relationships. Although this pattern is clear, we lack an understanding of the impact of parental attitudes on sexuality education and expression for adults with ID. The current study examines parental experiences attending to sexuality education and sexuality expression for adults with ID compared to their typically developing adult siblings. A mixed methods design was used including an online survey with 50 parents nationwide, and follow-up phone/video conferencing interviews with a subset of 20 parents. Findings from this study indicate that parents are more engaged with adults with ID and struggle to determine the appropriate level of sexuality education they should be providing to individuals with ID. Findings add to our understanding of the important role of the parent, and provides insight into training to support parents as they navigate these experiences.