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Research contributions from the First Cancer Center Survivorship Research Forum

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Decades of continuous improvements in cancer treatment have led to a substantial increase in the longevity of individuals with cancer forecasted to grow to over 22 million by 2030 [1].… Click to show full abstract

Decades of continuous improvements in cancer treatment have led to a substantial increase in the longevity of individuals with cancer forecasted to grow to over 22 million by 2030 [1]. However, cancer does not end with the end of treatment. In the aftermath of a cancer diagnosis and its treatments, many individuals require long-term care and attention related to chronic issues such as fatigue, cognitive changes, cardiovascular disease, metabolic syndrome, and secondary cancers [2, 3]. Individuals also encounter stress in their work, finances, and insurance because of their cancer history. They experience anxiety, depressive symptoms, and fears related to recurrence, treatment exposures, new cancers, or existential concerns that extend to their families. Bringing together cancer survivor researchers, clinical specialists and patient advocates, with a focus on health care delivery, the use of technology and risk stratification is imperative in enhancing the exchange of ideas, mentoring junior faculty and researchers. The Cancer Center Survivorship Research Forum facilitate the research and implementation of a cancer survivor research agenda [4–6]. After the National Cancer Institute’s Biennial Cancer Survivorship Conference and the American Society of Clinical Oncology’s (ASCO) Cancer Survivorship Symposium were discontinued in 2018 due to financial constraints and difficulties in achieving goals related to connecting with primary care, it has been difficult to connect cancer survivorship researchers and clinicians together with advocates to foster such exchange, collaboration, and innovation. Aligned with the mission of each National Cancer Institute-designated Cancer Center, we hosted the first Cancer Center Survivorship Research Forum April 15–16, 2021 (https:// ccsrf. umn. edu). This platform, to be continued biannually for at least the next 8 years, provided a unique and timely opportunity to bring together clinicians, researchers, patient advocates, and professional societies spanning the disciplines of oncology, radiation oncology, psychooncology, nursing, exercise physiology, primary care, and rehabilitation around the shared goal of improving the health and healthcare delivery of cancer survivors. The aim of the Journal of Cancer Survivorship: Research and Practice is to provide and promote a multidisciplinary platform aimed at improving the understanding, care, and care delivery of cancer survivors. Within this special section of the journal, researchers from the first Cancer Center Survivorship Research Forum conference highlight some of the work presented and discussed. The themes of the conference focused on innovations in healthcare delivery, use of technology to extend and enhance care, implementing patient-generated data, building an ecosystem of care, and addressing ongoing needs for unique populations. The second aim of the conference was to facilitate collaboration and exchange of research ideas. The cancer survivorship landscape is changing as cancer patients survive longer, and the baby boomers age [5, 7]. Not only will this growing number of individuals with ongoing care needs threaten to exceed the capacity of our healthcare system but high-quality patient-centered care will also require better multidisciplinary cooperation among patients, primary care, oncology providers, and Jewett, P.I., Vogel, R.I., Ghebre, R. et al. Telehealth in cancer care during COVID-19: disparities by age, race/ethnicity, and residential status. J Cancer Surviv (2021). https:// doi. org/ 10. 1007/ s1176402101133-4. Paper was inadvertently published online November 20, 2021. This paper is part of this Special Section.

Keywords: cancer; care; survivorship research; research; oncology; cancer center

Journal Title: Journal of Cancer Survivorship
Year Published: 2022

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