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The Mental Well-Being of Informal Carers of Adults on the Autism Spectrum: a Systematic Review

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Carers of autistic adults may experience increased day-to-day stress relating to their caring role. This review aims to (1) summarise the current literature on factors that affect mental well-being in… Click to show full abstract

Carers of autistic adults may experience increased day-to-day stress relating to their caring role. This review aims to (1) summarise the current literature on factors that affect mental well-being in carers of autistic adults and (2) map these results to an existing conceptual model of carer psychological well-being for individuals with developmental disabilities. Twenty-three studies met inclusion criteria. Some factors, such as adaptive skills and the quality of the caring relationship, were consistently associated with carer mental well-being. Conflicting or weak associations were found with several factors, including carer age and formal services received. These findings may be mapped to the King et al. ( Journal of Pediatric Psychology , 24 (1), 41–53, 1999 ) model, and adaptations to this model are discussed.

Keywords: carers adults; well informal; review; adults autism; mental well; informal carers

Journal Title: Review Journal of Autism and Developmental Disorders
Year Published: 2019

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