Systems for stroke rehabilitation and recovery are variable and fragmented; stroke survivors often experience gaps in care with detrimental effects on their recovery. We designed and hosted a multidisciplinary and… Click to show full abstract
Systems for stroke rehabilitation and recovery are variable and fragmented; stroke survivors often experience gaps in care with detrimental effects on their recovery. We designed and hosted a multidisciplinary and interactive workshop to discuss challenges facing patients recovering from stroke and brainstorm solutions. Forty one participants including clinicians, researchers, and stroke survivors attended the workshop. Participants were surveyed beforehand about challenges facing stroke recovery and results were tabulated as a word cloud. An interactive, design-thinking exercise was conducted which involved completing workbooks, hands-on prototype designing and presentations which were then analyzed through qualitative content analysis using an inductive approach. High frequency words in the word cloud of survey responses included "access", "fragmented" and "uncertainty". Qualitative analysis revealed six major challenge themes including poor (i) transitions in and (ii) access to care, (iii) barriers to health insurance, (iv) lack of patient support, (v) knowledge gaps, and (vi) lack of standardized outcomes. Eleven unique solutions were proposed that centered around new technologies, healthcare system changes, and the creation of new support roles. Analysis of the alignment between the challenges and solutions revealed that the single proposed solution that solved the most identified challenges was a "comprehensive stroke clinic with follow-up programs, cutting edge treatments, patient advocation and research". Through our interactive design-thinking workshop process and inductive thematic analysis, we identified major challenges facing patients recovering from stroke, collaboratively proposed solutions, and analyzed their alignment. This process offers an innovative approach to reaching consensus among interdisciplinary stakeholders.
               
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