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Evaluation of parental experience post-discharge and development of a parent focus group

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Abstract The aim of the Integrated Family Delivered Neonatal Care (IFDC) project is to improve parent-experience, parent-infant bonding, parental mental health, and infant health outcomes by pioneering a new care… Click to show full abstract

Abstract The aim of the Integrated Family Delivered Neonatal Care (IFDC) project is to improve parent-experience, parent-infant bonding, parental mental health, and infant health outcomes by pioneering a new care model at Imperial College Healthcare NHS Trust based on international evidence. It is particularly challenging to measure parent experience in neonatology, and there isn't a uniform internationally accepted tool for this. Understanding parents' experiences is vital to understand how quality of care can be improved. As parents are in a very vulnerable situation in the neonatal unit progressing on an often long, unpredictable and complicated journey, special approach and tools are needed to distill their overwhelming experience. Within the expanse of the Quality Improvement project we hoped to focus and achieve the following objectives: 1.To develop a sustainable feedback model for parent experience to collect feedback on neonatal care using validated tools. 2.To establish a parent focus group to collect feedback about our care and to create an experience co-designed parent educational material for our project.

Keywords: focus group; parent focus; parent; care; experience

Journal Title: Journal of Neonatal Nursing
Year Published: 2018

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