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Nurses’ Experiences of Spiritual Communication with Seriously Ill Children (S716)

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Results. 41 patient-family caregiver dyads are included in these analyses. On average, patients died 5.2 months after enrollment into the study. At baseline, patients’ average preference scores were 55.5 (SD1⁄432.8)… Click to show full abstract

Results. 41 patient-family caregiver dyads are included in these analyses. On average, patients died 5.2 months after enrollment into the study. At baseline, patients’ average preference scores were 55.5 (SD1⁄432.8) and family caregivers’ average preference scores were 40.1 (SD1⁄427.1)dthis difference was statistically significant (p1⁄4.04). At the last assessment prior to death, patient preference scores were 58.3 (33.2) and family caregivers were 34.4 (22.9)dthe difference was statistically significant (p1⁄4.003). However, when examining differences over time, we found that neither patient (p1⁄4.80), family caregiver (p1⁄4.26) or differences between patient and family caregiver preferences changed over time (p1⁄4.44). Conclusion/Implications: Patients and family caregivers have differing preferences regarding quality versus length of Life and their preferences diverge over time and at end of life. While not statistically significant, attention to these differences could be used to guide conversations between patients and family caregivers regarding preferences at the end of life.

Keywords: preference scores; family; patient family; family caregivers; family caregiver; statistically significant

Journal Title: Journal of Pain and Symptom Management
Year Published: 2017

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