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PRO45 PATIENT-REPORTED REAL-WORLD TREATMENT PATTERNS FOR CHARCOT-MARIE-TOOTH DISEASE IN THE UK AND US ASSESSED USING A DIGITAL 'BRING YOUR OWN DEVICE PLATFORM'

Tjalf Ziemssen1, Shahram Attarian2, Florian P Thomas3, Allison Moore4, Daniel Tanesse5, Xavier Paoli6, Viviane Bertrand6, Youcef Boutalbi6, Emma Bagshaw7, Hara Kousoulakou7, Mark Larkin7 1Carl Gustav Carus University Hospital, Dresden, Germany;… Click to show full abstract

Tjalf Ziemssen1, Shahram Attarian2, Florian P Thomas3, Allison Moore4, Daniel Tanesse5, Xavier Paoli6, Viviane Bertrand6, Youcef Boutalbi6, Emma Bagshaw7, Hara Kousoulakou7, Mark Larkin7 1Carl Gustav Carus University Hospital, Dresden, Germany; 2Hopitaux de Marseille, Marseille, France; 3Hackensack University Medical Center and Hackensack Meridian School of Medicine, Hackensack, USA; 4Hereditary Neuropathy Foundation, New York, USA; 5European CMT Federation, Fougères, France; 6Pharnext, Issy-les-Moulineaux, France; 7Vitaccess, Oxford, UK

Keywords: pro45 patient; reported real; patient reported; treatment patterns; real world; world treatment

Journal Title: Value in Health
Year Published: 2019

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