LAUSR

Purpose: Our investigative team is integrating mobile health technologies into pediatric blood and marrow transplant (PBMT) care. We aim to evaluate whether patient‐generated health data can be used to monitor health status and enhance symptom management. While there are numerous health‐related apps, none address the symptoms or care needs specific to PBMT patients. This article describes development of the Technology Recording to better Understand Pediatric Blood and Marrow Transplant (TRU‐PBMT) mobile application. Design and Methods: A one‐time survey was distributed to PBMT clinicians, caregivers, and outpatients to elicit feedback and suggestions for the app's design. Results: Feedback from clinicians (n = 23), caregivers (n = 5), and PBMT outpatients (n = 4) indicated the app would be acceptable and useable with this group of patients between eight and eighteen years of age. Suggestions from respondents included: making the app language and graphics more child‐friendly; adding symptoms such as fatigue, mucositis, bleeding; and a visual stool chart. Conclusion: Patient, caregiver, and clinician feedback was valuable in creation of the TRU‐PBMT app. We designed a pediatric friendly, PBMT‐symptom‐specific app, which we will test in future studies. Implications for Practice: This app facilitates patient‐generated health data collection and informs health care plans. Highlights:Mobile technology can be used to obtain patient generated health data.Designing and customizing an app allows for disease specific symptom data collection to inform patient care decisions.Feedback from patients, caregivers, and clinicians was valuable in the TRU‐PBMT app development.