PURPOSE Current radiation oncology patient education materials are above national readability recommendations. A graphic narrative educational tool, the Communicating the External Beam Radiation Experience (CEBRE) discussion guide, was developed to… Click to show full abstract
PURPOSE Current radiation oncology patient education materials are above national readability recommendations. A graphic narrative educational tool, the Communicating the External Beam Radiation Experience (CEBRE) discussion guide, was developed to facilitate patient-provider communication. A pilot study evaluated perceived benefits of CEBRE for patients and physicians. METHODS AND MATERIALS CEBRE was designed through a collaboration between physicians and designers. Designers interviewed patients, family members, and the clinical team. Interviews were coded for themes leading to design principles which drove the design of CEBRE including a graphic narrative component. CEBRE explains the radiotherapy care path. Readability was measured using the Flesch-Kincaid test. Patients receiving radiotherapy or in follow-up and practicing radiation oncologists reviewed CEBRE and completed independent surveys. Each survey included modified versions of the Systems Usability Score (SUS) and Spielberger State-Trait Anxiety Inventory short form (STAI-S) along with questions unique to CEBRE. Likert-type scores are reported as median [interquartile range]. RESULTS CEBRE scores a 5.4 Flesch-Kincaid grade level. Thirty-four patients and 15 radiation oncologists completed surveys. Patients completed a high school/GED (18%), a 2-year degree or some college (50%), or at least 4 years of college (32%). Patient and physician responses were concordant. On a scale of 1-5 for modified SUS and 1-4 for modified STAI ("strongly disagree" to "strongly agree") the SUS scores were 4[4-5] and 4[4-5] and STAI scores were 3[3-4] and 3[3-3.5] for patients and providers respectively. This indicates CEBRE is usable and would decrease anxiety. Compared to text, the graphic narrative component of CEBRE was rated as "quite helpful" (4[4-5]). CONCLUSIONS CEBRE, a graphic narrative education tool developed through a novel collaboration between designers and radiotherapy stakeholders, is patient accessible and practical to facilitate patient-provider discussion. Perceived benefits demonstrating high usability and potential to decrease patient anxiety warrant further prospective investigation of CEBRE in the clinical setting.
               
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