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Brain Device Research and the Underappreciated Role of Care Partners before, during, and Post-Trial

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No 1223/2009 and repealing Council Directives 90/385/ EEC and 93/42/EEC (europa.eu) Sankary, L. R., M. Zelinsky, A. Machado, T. Rush, A. White, and P. J. Ford. 2022. Exit from brain… Click to show full abstract

No 1223/2009 and repealing Council Directives 90/385/ EEC and 93/42/EEC (europa.eu) Sankary, L. R., M. Zelinsky, A. Machado, T. Rush, A. White, and P. J. Ford. 2022. Exit from brain device research: A modified grounded theory study of researcher obligations and participant experiences. AJOB Neuroscience 13 (4):215–226. doi:10.1080/21507740.2021. 1938293. Strickland, E., and M. Harris. 2022. Their bionic eyes are now obsolete and unsupported. IEEE Spectrum. https:// spectrum.ieee.org/bionic-eye-obsolete (accessed June 24, 2022). van Velthoven, E. A. M., O. C. van Stuijvenberg, D. R. E. Haselager, M. Broekman, X. Chen, P. Roelfsema, A. L. Bredenoord, and K. R. Jongsma. 2022. Ethical implications of visual neuroprostheses—A systematic review. Journal of Neural Engineering 19 (2):026055. doi: 10.1088/1741-2552/ac65b2. White, M., and R. G. Whittaker. 2022. Post-trial considerations for an early phase optogenetic trial in the human brain. Open Access Journal of Clinical Trials 14:1–9. doi: 10.2147/OAJCT.S345482. World Medical Association. 2000. Declaration of Helsinki, ethical principles for medical research involving human subjects. 52nd WMA General Assembly, Edinburgh, Scotland. World Medical Association. 2013. World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. Journal of the American Medical Association 310 (20):2191–4.

Keywords: brain device; post trial; brain; research; device research

Journal Title: AJOB Neuroscience
Year Published: 2022

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