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“Please call my daughter”: Ethical practice in dementia care as an art of dwelling

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This article aims to extend the current understanding of ethical practice within a dementia context, in which people living with dementia are often taken for granted as mere beneficiaries of… Click to show full abstract

This article aims to extend the current understanding of ethical practice within a dementia context, in which people living with dementia are often taken for granted as mere beneficiaries of care, rather than as co-producers in day-to-day care practice. Building on a decade of voluntary work and a year of fieldwork (including six weeks’ intensive observation of nightlife) at a Jewish care home in London, I pay attention to the affective dimension of ethical practice at the moment of sleep disturbance of a resident with dementia. Inspired by Heidegger’s concept of dwelling, I understand the episode not as pathological, but as a process through which ethical subjects emerge in the making of ongoing, entangled ethical endeavors. I argue that ethical practice is neither predetermined nor random: rather, it is the way in which those involved continuously respond and attune to the ever-changing circumstances: what I call an ‘art of dwelling’.

Keywords: dementia; ethical practice; art dwelling; practice; care

Journal Title: HAU: Journal of Ethnographic Theory
Year Published: 2020

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