LAUSR

By applying the PHR, a literature-based assessment catalogue was designed and piloted (PIM-check list) with the PIM optimization team (experts, network supporters and experienced end-users). It contains altogether 31 criteria that are clustered into: (1) correctness & validity, (2) 'content-related readability', (3) 'structural readability' and (4) 'graphic-/formatting-related readability'. The PIM is assessable through a traffic light rating system. This simple rating system enables not only experts, but also the end-users (cancer patients) to easily evaluate the PIM without initial and complex training. Moreover, for each criterion, an open text field is provided to write in suggestions for improvement. The available isPO PIM were assessed with this instrument by three groups: (1) experts (network supporters & external evaluators), (2) self-help representatives, and (3) isPO programme service providers. Several feedback loops encouraged all participants to provide critical feedback. In addition to the improvement suggestions from the completed PIM-check lists, a hierarchical overview of the PIM was developed by the PIM-optimization team. It highlights the moment of being in contact with the PIM, the specification of the target group and the depth of information in the specific PIM. These aspects were also considered when creating two new PIM (poster & one-pager document concerning the study consent form). In addition, a uniform design for the 'door-opener' PIM (poster & flyer) was aimed to be a “recognition factor”. Both the optimized and newly designed PIM were presented to and assessed by experienced cancer patients that do not participate in isPO. Suggestions for further improvements were integrated by the PIM-team. The PIM were presented to the isPO service providers for further optimization proposals. A final test for its comprehensibility was conducted using experienced patients in a focus group discussion, and the new PIM were implemented in the field.