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How many people have sickle cell disease in the UK?

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Background Sickle Cell Disease (SCD) is now one of the most common serious genetic condition in England. There is no reliable estimate of the total number of people living with… Click to show full abstract

Background Sickle Cell Disease (SCD) is now one of the most common serious genetic condition in England. There is no reliable estimate of the total number of people living with SCD in the UK, to support commissioners and providers of services for people with SCD. Aim To obtain reliable data on the total number of people living with SCD in the UK in 2016. Method Information was requested from all national databases known to hold information on the number of people living with SCD in the UK. The information from each data source was first reviewed to estimate likely inaccuracies and then combined to provide a best estimate of people living with SCD in the UK. Conclusion This process indicated there are are about 14000 people living with SCD in the UK. This is equivalent to 1 in 4600 people.

Keywords: number people; living scd; cell disease; people living; sickle cell

Journal Title: Journal of Public Health
Year Published: 2018

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