LAUSR

OBJECTIVES To identify factors associated with patients' and parents' reported satisfaction in juvenile idiopathic arthritis (JIA), measured with the juvenile arthritis child and parent acceptable symptom state (JA-CASS and JA-PASS, respectively). METHODS A prospective cohort of 239 JIA patients and 238 parents in a tertiary centre who completed the juvenile arthritis multidimensional assessment report (JAMAR) was analysed cross-sectionally. Primary outcome was positive JA-CASS and JA-PASS, respectively. Items of the JAMAR, as well as JIA subtype, demographics and disease activity parameters were analyzed in univariate analysis. A multivariable logistic regression analysis was used to build models explaining the variance of the primary outcome as dependent variable. RESULTS 141 (59.0%) of 239 patients and 149 (62.6%) of 238 parents were satisfied with their or their child's current condition. For patients, determinants in the final model were a shorter duration of morning stiffness (p= 0.001), a lower age at disease onset (p= 0.044), a longer disease duration (p= 0.009) and higher rating of the patient's well-being measured on a visual analogue scale (VAS) (p= 0.004). For parents, determinants were the current state of disease activity (current state of persistent activity p= 0.002, relapse p< 0.005), problems at school (p= 0.002) and the items regarding quality of life (QoL) (p= 0.005). CONCLUSION Our data highlight the importance of patients' and parents' opinion in the evaluation of disease activity and support their integration into the shared decision-making in daily clinical practice to improve the quality of medical care.