LAUSR

Despite recent developmental screening guidelines, rates of neurodevelopmental disorders (NDDs) remain lower than expected in children with sickle cell disease (SCD). A retrospective chart review identified 276 eligible patients; 214 charts were available for developmental screening and 207 charts for autism‐specific screening. Developmental surveillance/screening was conducted in 70% of charts and autism‐specific screening in 19% of charts. Validated tools were used in 32% of developmental screenings and 92% of autism‐specific screenings. Many children (57%) were screened outside recommended ages. In conclusion, children with SCD are not regularly receiving appropriate developmental screening and surveillance by their healthcare providers.