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Open questions in haemophilia, such as effectiveness of innovative therapies, clinical and patient‐reported outcomes (PROs), epidemiology and cost, await answers. The aim was to identify data attributes required and investigate… Click to show full abstract
Open questions in haemophilia, such as effectiveness of innovative therapies, clinical and patient‐reported outcomes (PROs), epidemiology and cost, await answers. The aim was to identify data attributes required and investigate the availability, appropriateness and accessibility of real‐world data (RWD) from German registries and secondary databases to answer the aforementioned questions.
Keywords:
real world;
prospects research;
research haemophilia;
haemophilia real;
world data
Journal Title: Haemophilia
Year Published: 2018
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Journal Title: Haemophilia
Year Published: 2018
Link to full text (if available)
Share on Social Media: Sign Up to like & get
recommendations!