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Social support and resilience in persons with severe haemophilia: An interpretative phenomenological analysis

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Haemophilia is a hereditary haemorrhagic disorder characterized by deficiency or dysfunction of coagulation factors. Recurrent joint and muscle bleeds lead to progressive musculoskeletal damage. Haemophilia affects patients physically but also… Click to show full abstract

Haemophilia is a hereditary haemorrhagic disorder characterized by deficiency or dysfunction of coagulation factors. Recurrent joint and muscle bleeds lead to progressive musculoskeletal damage. Haemophilia affects patients physically but also socially and psychologically. Traumatic experiences, chronic stress and illnesses can lead to mental disorders, but many persons with haemophilia maintain a highly positive outlook.

Keywords: persons severe; haemophilia interpretative; social support; support resilience; resilience persons; severe haemophilia

Journal Title: Haemophilia
Year Published: 2020

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