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Building the blueprint: Formulating a community‐generated national plan for future research in inherited bleeding disorders

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Decades of inherited bleeding disorders (BD) research transformed severe haemophilia from a childhood killer to a disorder managed across a full lifespan for many in economically developed countries. Health equity,… Click to show full abstract

Decades of inherited bleeding disorders (BD) research transformed severe haemophilia from a childhood killer to a disorder managed across a full lifespan for many in economically developed countries. Health equity, a life unimpaired by disease complications, however, remains unimaginable for most people with an inherited BD (PWIBD).

Keywords: formulating community; inherited bleeding; building blueprint; bleeding disorders; blueprint formulating; research

Journal Title: Haemophilia
Year Published: 2022

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