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ACTIVLIM‐Hemo: A new self‐reported, unidimensional and linear measure of activity limitations in persons with haemophilia

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To assess activity limitations in people with haemophilia (PwH), the self‐reported Haemophilia Activity List (HAL) is widely employed, despite several methodological limitations impacting the interpretation of categorical scores. Modern psychometric… Click to show full abstract

To assess activity limitations in people with haemophilia (PwH), the self‐reported Haemophilia Activity List (HAL) is widely employed, despite several methodological limitations impacting the interpretation of categorical scores. Modern psychometric approaches avoid these limitations by using a probabilistic model, such as the Rasch model. The ACTIVLIM is a Rasch‐built measurement of activity limitations previously validated in several clinical conditions like neuromuscular disorders.

Keywords: activity limitations; self reported; activity; haemophilia activlim; activlim hemo

Journal Title: Haemophilia
Year Published: 2022

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