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Expectation and loss when gene therapy for haemophilia is not an option: An exigency sub‐study

Qualitative studies have explored why people with haemophilia (PwH) might consider or forgo gene therapy, the impact it has had on those who have received it, and what support might… Click to show full abstract

Qualitative studies have explored why people with haemophilia (PwH) might consider or forgo gene therapy, the impact it has had on those who have received it, and what support might be needed throughout the process. No studies have yet examined what withdrawal prior to transfection might mean for PwH and their families.

Keywords: loss gene; expectation loss; gene therapy; therapy haemophilia; gene

Journal Title: Haemophilia
Year Published: 2023

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