LAUSR

two or three times due to a high failure rate. Late dumping syndrome has not been previously reported in the CHARGE syndrome literature. Its presentation may be unique in CHARGE syndrome, with symptoms presenting up to a decade after surgery. Furthermore, the treatment recommendations can be difficult to implement as individuals often display difficult feeding behaviours such as pocketing of food in cheeks, over-stuffing one’s mouth with food or consuming texture-restricted diets (e.g. puree only) (Table 1). These feeding challenges are often not elicited in the general history. It is known from the CHARGE syndrome Facebook page and the International CHARGE conferences that the symptoms of late dumping syndrome are not unusual. Continual surveillance for late dumping syndrome should be a standard part of health care management in CHARGE syndrome. The newly developed checklist can aid in health supervision across the lifespan, making sure that new issues are not missed.