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End‐of‐life care for children with complex congenital heart disease: Parents' and medical care givers' perceptions

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In complex congenital heart diseases (CHD), patients may remain affected by significant morbidity and mortality after surgery. We analysed the end‐of‐life (EoL) care in children with severe CHD who died… Click to show full abstract

In complex congenital heart diseases (CHD), patients may remain affected by significant morbidity and mortality after surgery. We analysed the end‐of‐life (EoL) care in children with severe CHD who died in our institution and investigated perspectives of parents and health‐care professionals (HCPs).

Keywords: complex congenital; end life; care; congenital heart; care children

Journal Title: Journal of Paediatrics and Child Health
Year Published: 2020

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