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Invisible bleeds: Lived experiences and barriers to care for men with hemophilia

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Guidelines of the World Federation of Hemophilia support the provision of equitable, optimal care for people with hemophilia (PWH). However, limited research exists examining the lived experiences of PWH or… Click to show full abstract

Guidelines of the World Federation of Hemophilia support the provision of equitable, optimal care for people with hemophilia (PWH). However, limited research exists examining the lived experiences of PWH or the barriers to care they may encounter. The primary objective of this exploratory study was to describe the experiences of men with hemophilia in Canada.

Keywords: barriers care; men hemophilia; experiences barriers; lived experiences; bleeds lived; invisible bleeds

Journal Title: Journal of Thrombosis and Haemostasis
Year Published: 2021

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