LAUSR

Introduction Transition is an important concept in the management of young people and adolescents (YPA) with long term or chronic illness and refers to the planned move of YPA from their paediatric health care provider across to adult services. The importance of a planned, successful transition has been highlighted in recent years, after multiple studies showed that a poor transition can lead to poor patient adherence, outpatient attendance and overall decline in patient outcomes. In order to develop a more structured transition programme, the key areas of need, from the point of view of YPA and health care workers, should be identified. Aim To evaluate health care workers perception of the current transition process in Ireland and identify areas of need and concern. Methods An 18 question survey was developed and distributed amongst health care workers in both the adult and paediatric services via survey monkey. The responses were then collated and analysed using Microsoft Excel. Results The survey registered 143 responders in total, with an average of 141 responders per question (range 136–143). 78% worked in a paediatric healthcare, and 57% of those reported working in a tertiary care setting. 70% were directly involved in the transfer of YPA from paediatric to adult services. A structured transition programme was felt to be ‘very important’ by 92% of responders, with the majority (87%) suggesting between 12 and 16 years as the most appropriate ages to start this process. Notably, 73% felt that Irish YPA were inadequately prepared for the move to adult services and highlighted poor access to adult services, lack of resources and lack of communication between paediatric and adult services as the biggest barriers to a successful transition. Conclusion This study identified some of the main barriers to a successful transition, from the point of view of health care workers. The need for a structured transition programme, along with guidelines and increased resources was particularly highlighted.