LAUSR

SEARCH STRATEGY PubMed and MEDLINE were searched in October 2020 for eligible articles regarding Down syndrome using the following search terms: ((Down(s) syndrome OR Trisomy 21 OR partial Trisomy 21 OR mosaicism) AND (neonate OR newborn OR infant OR baby) AND (parent(s) OR family OR families OR mother(s) OR father(s) AND (diagnosis OR perception OR experience OR acceptance)). Titles and abstracts were reviewed, and duplicates were removed. Three hundred thirtythree abstracts were screened, three extracted and one included. Literature was included if it provided recommendations for disclosure of a postnatal diagnosis of DS. Literature was excluded if it was not written in English, or only provided information regarding the disclosure of a prenatal diagnosis of DS. A hand search of the references was also performed, contributing six additional papers. This resulted in the total inclusion of seven papers from both avenues (table 1).