LAUSR

1 Rare Epilepsy Network, Bethedsa, MD, USA 2 Wishes for Elliott, Washington, DC, USA 3 Epilepsy Foundation, Landover, MD, USA 4 Dravet Syndrome Foundation, Cherry Hill, NJ, USA 5 TSC Alliance, Silver Spring, MD, USA 6 The Brain Recovery Project Childhood Epilepsy Surgery Foundation, Los Angeles, CA, USA 7 International Foundation for CDKL5 Research, Wadsworth, OH, USA 8 Dup15q Alliance, Highland Park, IL, USA 9 CURE Epilepsy, Chicago, IL, USA *Correspondence: Ilene Miller, JD, LLM, Rare Epilepsy Network, 6716 Vendome Terr, Bethedsa, MD 20817, USA. Email: [email protected]