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Come back: Identifying targets to engage young adult survivors who have been lost to follow-up.

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29Background: Despite national survivorship guidelines, follow-up care after treatment has ended is generally lacking for AYA survivors. Our previous pilot study involving 27 AYA in a focus group found that… Click to show full abstract

29Background: Despite national survivorship guidelines, follow-up care after treatment has ended is generally lacking for AYA survivors. Our previous pilot study involving 27 AYA in a focus group found that the major barriers to follow-up included loss of health insurance, poor communication with their oncologist, and on-going adjustment challenges. The current study aimed to determine the proportion of young adult survivors who no longer continued with follow-up care at our institution and examine which factors contributed to the lack of follow-up. Our objectives were: 1. Evaluate how many AYAs who completed treatment may be lost to follow up over time; 2. Determine which AYAs are most at risk of being lost to follow-up. Methods: Data Analysis: 1. AYA Survivorship Dataset – Tumor Registry used to include the following: Current age, age at diagnosis (captured those 18 and 39 years of age), gender, date of diagnosis, date of most recent visit, disease type and histology. 2. Compare follow-up appointments a...

Keywords: come back; young adult; adult survivors; lost follow; back identifying

Journal Title: Journal of Clinical Oncology
Year Published: 2018

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