LAUSR

AIM The Ostomy Life Study 2019 aimed to obtain a better understanding of the challenges faced by people with stoma. METHODS Online survey with participants from 17 countries. FINDINGS Of the 54 614 individuals invited to take part, 5187 responded; 62% of the respondents avoided physical and social activities because of their stoma and 37% had never consulted their stoma care nurse to have the fit of their stoma product checked. In a subgroup receiving questions on leakage (n=4209), output under the baseplate and leakage onto clothes were experienced within the previous month by 76% and 26% of respondents, respectively. Higher chance of leakage was associated with an irregular stoma shape and peristomal body profile; a stoma level at or below the skin surface; and the presence of creases, folds and other changes in the peristomal area. CONCLUSION Leakage and access to a stoma care nurse to provide the necessary care and guidance remain important concerns for individuals with a stoma.