LAUSR

Background Little research attention has been given to understanding the lived experience of parents who access mental health services in the context of child anxiety disorders. This paper reports on findings specific to parents’ lived experience of accessing services for their child living with anxiety and the recommendations they provided for improving access. Methods We used the qualitative research approach of hermeneutic phenomenology. The sample included 54 Canadian parents of youth living with an anxiety disorder. Parents took part in one semi-structured and one open-ended interview. We used a 4 staged data analysis process informed by van Manen’s approach and Levesque and colleagues’ framework of access to healthcare. Results The majority of parents reported being female (85%), white (74%), and single parents (39%). Parents’ ability to seek and obtain services was affected by not knowing when or where to access services, having to learn to navigate the system, limited availability of services, lack of timely services and interim supports, limited financial resources, and clinicians’ dismissal of parental concerns and knowledge. Provider (ability to listen), parent (willingness to participate in therapy), child (same race/ethnicity as provider), and service characteristics (cultural sensitivity) influenced whether parents perceived services as approachable, acceptable, and appropriate. Parents’ recommendations focused on: (1) improving the availability, timeliness, and coordination of services, (2) providing supports for parents and the child to facilitate obtaining care (education, interim supports), (3) improving communication with and among healthcare professionals, (4) the need to recognize parents’ experience-based knowledge, and (5) encouraging parents to take care of themselves and advocate for their child. Conclusions Our findings point to possible avenues (parents’ ability, service characteristics) that can be targeted to improve service access. As experts on their situation, parents’ recommendations highlight priority needs of relevance to health care professionals and policymakers.