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General principles of regulation of pre-implantation genetic diagnosis: the definition of Russian prospects taking into account foreign experience

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The article is devoted to the problem of determining the basic principles of the legal regulation of preimplantation genetic diagnosis (PGD) in the Russian Federation, taking into account existing international… Click to show full abstract

The article is devoted to the problem of determining the basic principles of the legal regulation of preimplantation genetic diagnosis (PGD) in the Russian Federation, taking into account existing international experience. It is substantiated that the development of national legislation in this area should include the legal definition of PGD as one of the stages of using assisted reproductive technologies, as well as the establishment of generally binding requirements for the procedure, conditions and features of the diagnosis, taking into account the need to minimize the damage caused to the embryo. A comprehensive model for the development of domestic legislation and law enforcement is proposed, the content of which includes state guarantees and restrictions harmoniously complemented by ethical requirements developed by the professional community of specialists in genetics, extending the content of the process of genetic counseling for PGD, interpretation of research results and ensuring compliance with the principle of reproductive freedom in deciding on the results of diagnosis.

Keywords: definition; diagnosis; taking account; genetic diagnosis; general principles; experience

Journal Title: prenatal diagnosis
Year Published: 2019

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