LAUSR

1https://www.medicaljournals.se/acta/content/abstract/10.2340/00015555-3052 Pemphigoid diseases are subepidermal autoimmune bullous diseases, characterized by autoantibodies against structural proteins of the dermal–epidermal junction (1). Symptoms of severe pruritus, with or without tense blistering of the skin or mucosa, cause a high disease burden (2). Basic and clinical research has led to better understanding of the mechanisms of pemphigoid diseases and novel therapies have been developed (3). Nonetheless, there are gaps in our knowledge, and several disease areas are not studied yet. These unmet needs have not been well-characterized. While available time and resources are often limited in research, it is essential to address topics relevant to both patients and healthcare professionals (4). It is widely recognized now that patients play an important role in setting the research agenda (5). The aim of this study was to explore and prioritize unmet needs in pemphigoid diseases from the perspective of patients, clinicians and researchers, in order to guide future research towards important research topics. A secondary aim was to identify points of improvement in patient care.