The experiences of adolescent siblings of children with rare genetic conditions: “It's made me who I am”
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Genetic Counseling"
DOI: 10.1002/jgc4.1636
Abstract: Childhood genetic conditions impact not only the child who is diagnosed but also the day‐to‐day lives of all members of a family. However, our understanding of the perspectives and needs of unaffected adolescents in families… read more here.
Keywords: adolescent siblings; children rare; genetic conditions; experiences adolescent ... See more keywords