Acute pain in adolescents and young adults with sickle cell disease: Delayed and increased opioid dosing following transition to adult care
Sign Up to like & getrecommendations! Published in 2017 at "American Journal of Hematology"
DOI: 10.1002/ajh.24647
Abstract: The transition from pediatric to adult care is a high risk time for adolescent and young adult (AYA) patients with sickle cell disease (SCD). Management of acute pain is a major point of contact between… read more here.
Keywords: adult; transition; adult care; cell disease ... See more keywords
[Transition to adult care for patients with epilepsy].
Sign Up to like & getrecommendations! Published in 2022 at "Der Nervenarzt"
DOI: 10.1007/s00115-022-01271-9
Abstract: The transition of children and adolescents with epilepsy to the adult healthcare system presents many challenges. The disease is frequently accompanied by cognitive and developmental impairments that make it difficult to achieve self-management of the… read more here.
Keywords: transition adult; adult care; adult; care patients ... See more keywords
Development of a transition readiness score for adolescents living with perinatally-acquired HIV and transitioning to adult care
Sign Up to like & getrecommendations! Published in 2022 at "AIDS and Behavior"
DOI: 10.1007/s10461-022-03650-4
Abstract: We created a transition readiness score for adolescents with perinatally-acquired HIV as they transition from pediatric to adult care. Of the 199 adolescents who transitioned to adult care, 84 (42%) had viral suppression ( read more here.
Keywords: transition readiness; adult care; readiness; readiness score ... See more keywords
Pediatric and Adult Recommendations Vary for Sibling Testing in Cystic Fibrosis
Sign Up to like & getrecommendations! Published in 2018 at "Journal of Genetic Counseling"
DOI: 10.1007/s10897-018-0220-1
Abstract: Four to 5 % of cystic fibrosis (CF) patients are diagnosed as adults and often have subtler symptoms. Their siblings are at genetic risk to also have a subtler disease state. Diagnostic testing is recommended… read more here.
Keywords: cystic fibrosis; adult; adult care; pediatric adult ... See more keywords
Barriers in transitioning urologic patients from pediatric to adult care.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of pediatric urology"
DOI: 10.1016/j.jpurol.2020.12.020
Abstract: As the advances in medicine continue to emerge, more children with congenital or pediatric-onset chronic urologic conditions are surviving well into adulthood. This imposes an ever rising there is a need for adequate transition of… read more here.
Keywords: transition; adult care; patients pediatric; pediatric adult ... See more keywords
Transitions in Rheumatic Disease: Pediatric to Adult Care.
Sign Up to like & getrecommendations! Published in 2018 at "Pediatric clinics of North America"
DOI: 10.1016/j.pcl.2018.04.007
Abstract: Although it has been widely acknowledged for more than two decades that transition from pediatric to adult care is a vulnerable time for adolescents and young adults with rheumatic diseases, current primary and subspecialty care… read more here.
Keywords: transition; adult care; pediatric adult; care ... See more keywords
Predictors of Adverse outcomes in patients with systemic lupus erythematosus transitioning to adult care.
Sign Up to like & getrecommendations! Published in 2021 at "Seminars in arthritis and rheumatism"
DOI: 10.1016/j.semarthrit.2021.02.001
Abstract: BACKGROUND The transition from pediatric to adult care is a vulnerable period for individuals with chronic diseases. We sought to identify risk factors associated with poor outcomes in patients with childhood-onset systemic lupus erythematosus (cSLE)… read more here.
Keywords: adult; hospitalization; outcomes patients; adult care ... See more keywords
Transition from paediatric to adult care in patients with mucopolysaccharidosis (MPS)
Sign Up to like & getrecommendations! Published in 2019 at "Molecular Genetics and Metabolism"
DOI: 10.1016/j.ymgme.2018.12.223
Abstract: Mucopolysaccharidoses (MPS) are rare disorders associated with enzyme deficiencies, resulting in glycosaminoglycan (GAG) accumulation in multiple organ systems. Because of improvements to the diagnosis and treatment of MPS, patients are increasingly surviving to adulthood, and… read more here.
Keywords: care; adult care; transfer; paediatric adult ... See more keywords
Emotional Distress, Self-Management Skills, and Expectations Among Adolescents and Young Adult Childhood Cancer Survivors in Transition from Pediatric to Adult Care: A Brief Report.
Sign Up to like & getrecommendations! Published in 2023 at "Journal of adolescent and young adult oncology"
DOI: 10.1089/jayao.2022.0166
Abstract: The transition from pediatric to adult care poses several emotional and personal challenges to adolescents and young adult (AYA) childhood cancer survivors (CCSs), which need attention to avoid the risk of nonadherence and medical dropout.… read more here.
Keywords: young adult; pediatric adult; adult care; care ... See more keywords
Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Pediatric Hematology/Oncology"
DOI: 10.1097/mph.0000000000002490
Abstract: Transition from pediatric to adult care for adolescents and young adults (AYA) with sickle cell disease (SCD) comes at a time when a range of biopsychosocial issues occur simultaneously. A new survey sought information from… read more here.
Keywords: pediatric adult; adult care; survey; care ... See more keywords
Do not forget the parents—Parents' concerns during transition to adult care for adolescents with congenital heart disease
Sign Up to like & getrecommendations! Published in 2018 at "Child: Care, Health and Development"
DOI: 10.1111/cch.12529
Abstract: BACKGROUND Growing up with congenital heart disease (CHD) often means transfer to adult care and lifelong medical follow-up. An optimal transition process usually involves a multipart collaboration between the patient, their parents and other family… read more here.
Keywords: adult; transition; adult care; heart disease ... See more keywords