“If not me, who?”: Awareness- and Self-Advocacy-Related Experiences of Adults With Diverse Rare Disorders
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DOI: 10.1177/10497323221135974
Abstract: In a two-study project, researchers used qualitative methods and inductive thematic analyses to investigate the lived awareness- and advocacy-related experiences of 27 adults with over 35 different rare diseases, disorders, or disabilities (RDs). In Study… read more here.
Keywords: advocacy related; experiences adults; advocacy; related experiences ... See more keywords