[Dressing material in children with epidermolysis bullosa : A qualitative study on experiences of parents and affected children].
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DOI: 10.1007/s00482-019-00439-8
Abstract: BACKGROUND Epidermolysis bullosa (EB) is a rare genetic disease that soon becomes apparent after a child's birth. Mechanical stress in particular causes painful skin-blistering that potentially leads to numerous complications. Dressing materials fulfill important functions for children… read more here.
Keywords: affected children; epidermolysis bullosa; parents affected; dressing materials ... See more keywords
Hypophosphatasia: Vitamin B6 status of affected children and adults.
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DOI: 10.1016/j.bone.2021.116204
Abstract: Hypophosphatasia (HPP) is the heritable dento-osseous disease caused by loss-of-function mutation(s) of the gene ALPL that encodes the tissue-nonspecific isoenzyme of alkaline phosphatase (TNSALP). TNSALP is a cell-surface homodimeric phosphomonoester phosphohydrolase expressed in healthy people… read more here.
Keywords: affected children; plp; children adults; hpp ... See more keywords
Mindfulness-based skills training group for parents of obsessive-compulsive disorder-affected children: A caregiver-focused intervention.
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DOI: 10.1016/j.ctcp.2020.101098
Abstract: BACKGROUND AND PURPOSE Parents of children with obsessive-compulsive disorder (OCD) report significant emotional and socio-occupational impacts. There is, however, currently insufficient support for these parents. This study examined a mindfulness-based intervention for parents of OCD-affected… read more here.
Keywords: mindfulness; intervention; affected children; compulsive disorder ... See more keywords