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Published in 2020 at "Pediatric research"
DOI: 10.1038/s41390-020-0995-2
Abstract: It is becoming increasingly common to return individual-level research results to participants, especially in genetic studies (1). Yet, when the study ends, it is rare for participants to learn the study’s aggregate results (2). The…
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Keywords:
aggregate research;
research;
research findings;
disseminating aggregate ... See more keywords
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Published in 2025 at "BMJ Open"
DOI: 10.1136/bmjopen-2025-107270
Abstract: Objectives To synthesise the current evidence about practices, preferences and challenges related to returning aggregate research results to participants, with implications for public health, health equity and policy development. Design Scoping review conducted in accordance…
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Keywords:
aggregate research;
returning aggregate;
research;
results participants ... See more keywords