Development and Implementation of the AIDA International Registry for Patients With Still's Disease
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DOI: 10.3389/fmed.2022.878797
Abstract: Objective Aim of this paper is to present the design, construction, and modalities of dissemination of the AutoInflammatory Disease Alliance (AIDA) International Registry for patients with systemic juvenile idiopathic arthritis (sJIA) and adult-onset Still's disease… read more here.
Keywords: still disease; patients still; registry; international registry ... See more keywords
Development and Implementation of the AIDA International Registry for Patients With Undifferentiated Systemic AutoInflammatory Diseases
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DOI: 10.3389/fmed.2022.908501
Abstract: Objective This paper points out the design, development and deployment of the AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to pediatric and adult patients affected by Undifferentiated Systemic AutoInflammatory Diseases (USAIDs). Methods This is an… read more here.
Keywords: autoinflammatory; development; autoinflammatory diseases; aida international ... See more keywords
Development and Implementation of the AIDA International Registry for Patients With VEXAS Syndrome
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DOI: 10.3389/fmed.2022.926500
Abstract: Objective The aim of this paper is to present the AutoInflammatory Disease Alliance (AIDA) international Registry dedicated to Vacuoles, E1 enzyme, X-linked, Autoinflammatory, Somatic (VEXAS) syndrome, describing its design, construction, and modalities of dissemination. Methods… read more here.
Keywords: patients vexas; aida international; registry; international registry ... See more keywords
Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome
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DOI: 10.3389/fmed.2022.931189
Abstract: Objective The present paper describes the design, development, and implementation of the AutoInflammatory Disease Alliance (AIDA) International Registry specifically dedicated to patients with Schnitzler's syndrome. Methods This is a clinical physician-driven, population- and electronic-based registry… read more here.
Keywords: development implementation; aida international; registry; international registry ... See more keywords
Development and implementation of the AIDA International Registry for patients with Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis syndrome
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DOI: 10.3389/fped.2022.930305
Abstract: Objective Aim of this paper is to illustrate the methodology, design, and development of the AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to patients with the Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis (PFAPA)… read more here.
Keywords: development; aida international; registry; international registry ... See more keywords