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1
Published in 2018 at "Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration"
DOI: 10.1080/21678421.2017.1353099
Abstract: Abstract Objectives: Practice guidelines in ALS care emphasise the role of the patient and their family in the decision-making process. We aimed to examine the ALS patient/family relationship in the decision-making process and to ascertain…
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Keywords:
decision making;
patients family;
family;
als care ... See more keywords
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recommendations!
2
Published in 2022 at "Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration"
DOI: 10.1080/21678421.2022.2040533
Abstract: Abstract The Covid-19 pandemic has impacted healthcare. Our aim was to identify how amyotrophic lateral sclerosis (ALS) care in the UK has been affected by the pandemic by exploring the experiences of people living with…
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Keywords:
als care;
lateral sclerosis;
covid pandemic;
care ... See more keywords