Self-reported baseline phenotypes from the International Fibrodysplasia Ossificans Progressiva (FOP) Association Global Registry.
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DOI: 10.1016/j.bone.2020.115274
Abstract: A global, patient-reported registry has been established to characterize the course of disease and track clinical outcomes in patients with fibrodysplasia ossificans progressiva (FOP), an ultra-rare genetic condition of progressive heterotopic ossification (HO) that results… read more here.
Keywords: progressiva fop; fibrodysplasia ossificans; baseline phenotypes; fop association ... See more keywords