"As time passes, her disability becomes severe." The struggles and challenges of caring for children living with spina bifida and hydrocephalus in Uganda: perspectives from caregivers.
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DOI: 10.1080/09638288.2025.2527947
Abstract: Abstract Purpose Spina bifida and hydrocephalus (SBH) are common neural tube defects that cause brain and spinal cord damage leading to loss of sensation, paralysis, deformities, and bladder/bowel dysfunction. Children with these conditions require substantial… read more here.
Keywords: caring children; spina bifida; parents siblings; support ... See more keywords
Changes and Needs Experienced by People Aging With Spina Bifida and Hydrocephalus
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DOI: 10.1093/geront/gnaf101
Abstract: Abstract Background and Objectives Thanks to medical advances, the life expectancy of people with spina bifida and/or hydrocephalus (SB/H) has increased considerably. However, little is known about their experience of aging, and few resources exist… read more here.
Keywords: needs experienced; spina bifida; people aging; changes needs ... See more keywords