Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence
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DOI: 10.1080/07347332.2018.1543376
Abstract: Abstract Purpose: Li-Fraumeni Syndrome (LFS) is an inherited tumor predisposition syndrome with lifetime cancer risks approaching 100% and evolving risk-management strategies. This study evaluated couples’ coping with LFS-related burdens. Research approach: Constructivist grounded theory and… read more here.
Keywords: fraumeni syndrome; burden diagnostic; couples coping; screening burden ... See more keywords