BRCA1/2 testing among young women with breast cancer in Massachusetts, 2010–2013: An observational study using state cancer registry and All‐Payer claims data
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DOI: 10.1002/cam4.4648
Abstract: Testing for BRCA1/2 pathogenic variants is recommended for women aged ≤45 years with breast cancer. Some studies have found racial/ethnic and socioeconomic disparities in testing. We linked Massachusetts' All‐Payer Claims Database with Massachusetts Cancer Registry… read more here.
Keywords: cancer registry; payer claims; brca1 testing; breast cancer ... See more keywords
The history and use of cancer registry data by public health cancer control programs in the United States
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DOI: 10.1002/cncr.30905
Abstract: Because cancer registry data provide a census of cancer cases, registry data can be used to: 1) define and monitor cancer incidence at the local, state, and national levels; 2) investigate patterns of cancer treatment;… read more here.
Keywords: cancer; cancer registry; registry data; cancer control ... See more keywords
Patient-reported outcomes in survivors of breast cancer one, three, and five years post-diagnosis: a cancer registry-based feasibility study
Sign Up to like & getrecommendations! Published in 2020 at "Quality of Life Research"
DOI: 10.1007/s11136-020-02652-w
Abstract: The burden of treatment toxicities in breast cancer requires longitudinal assessment of patient-centered outcomes. The current study aimed to assess the feasibility of collecting general and breast cancer-specific quality of life (QoL), ongoing symptoms and… read more here.
Keywords: cancer registry; breast cancer; patient; cancer ... See more keywords
Feasibility of collecting patient-generated health data to enhance cancer registry surveillance
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DOI: 10.1007/s11764-020-00970-z
Abstract: Purpose Patient-generated health data (PGHD) can provide information about population-level patterns in health outcomes that patients experience during cancer survivorship. Cancer registries do not collect PGHD as part of routine operations. This study assessed the… read more here.
Keywords: cancer registry; feasibility; cancer; health ... See more keywords
Descriptive epidemiology of primary malignant and non-malignant central nervous tumors in Spain: Results from the Girona Cancer Registry (1994-2013).
Sign Up to like & getrecommendations! Published in 2017 at "Cancer epidemiology"
DOI: 10.1016/j.canep.2017.07.005
Abstract: BACKGROUND Systematic registration of non-malignant central nervous system (CNS) tumors is a rare practice among European cancer registries. Thus, the real burden of all CNS tumors across Europe is underestimated. The Girona Cancer Registry provides… read more here.
Keywords: malignant non; epidemiology; cancer registry; non malignant ... See more keywords
Completeness of pediatric cancer registration in the Finnish Cancer Registry
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DOI: 10.1080/0284186x.2019.1638522
Abstract: M. Jokela , M. K. Leinonen , N. Malila , M. Taskinen and L. M. Madanat-Harjuoja Finnish Cancer Registry, Helsinki, Finland; Information Services Department, Unit of Statistics and Registers, National Institute for Health and Welfare,… read more here.
Keywords: helsinki finland; finnish cancer; cancer; cancer registry ... See more keywords
Applying recommended definition of aggressive prostate cancer: a validation study using high-quality data from the Cancer Registry of Norway
Sign Up to like & getrecommendations! Published in 2023 at "Acta Oncologica"
DOI: 10.1080/0284186x.2023.2175331
Abstract: Abstract Background The Prostate Cancer Cohort Consortium (PC3) Working Group proposed a definition for aggressive prostate cancer (PC) for aetiologic epidemiologic research. We aimed to validate this definition as well as a second approach utilising… read more here.
Keywords: cancer registry; definition aggressive; prostate cancer; cancer ... See more keywords
Impact of the COVID-19 pandemic on number and stages of tumors – data of a German cancer registry
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DOI: 10.1080/0284186x.2023.2187259
Abstract: In the last two years, the world has been conquered by the coronavirus disease 2019 (COVID-19). During the first year of the pandemic, delays in cancer diagnoses were observed for several types of tumors all… read more here.
Keywords: cancer registry; mortality rates; impact covid; number ... See more keywords
Trends in the Incidence of Cancer Among Adolescent and Young Adults in Alberta, 1983-2017: A Population-Based Study Using Cancer Registry Data.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of adolescent and young adult oncology"
DOI: 10.1089/jayao.2021.0223
Abstract: Purpose: To describe the cancer incidence burden and trends among adolescent and young adults (AYAs) in Alberta, Canada over a 35-year period. Methods: We obtained data from the Alberta Cancer Registry on all first primary… read more here.
Keywords: cancer; cancer registry; adolescent young; young adults ... See more keywords
The South Region Cancer Registry: an evaluation of its exhaustiveness in a cohort of lung cancer patients
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DOI: 10.1111/1759-7714.12915
Abstract: The regional cancer registry for Southern Portugal (ROR‐Sul) is a population‐based registry set up in 1988 to observe and monitor disease incidence, prevalence and survival. Recently, the need to monitor real‐life use of early approved… read more here.
Keywords: exhaustiveness; cancer registry; cohort; lung cancer ... See more keywords
Doubly robust estimator for net survival rate in analyses of cancer registry data.
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DOI: 10.1111/biom.12568
Abstract: Cancer population studies based on cancer registry databases are widely conducted to address various research questions. In general, cancer registry databases do not collect information on cause of death. The net survival rate is defined… read more here.
Keywords: cancer; cancer registry; survival rate; net survival ... See more keywords